Combining nationwide registries with the national biobank in Denmark (2024)

Couse name: Combining nationwide registries with the national biobank in Denmark 

PhD Programme: EB

Description: Connected through a single personal identification number, the CPR, Denmark contains one of the most comprehensive audits of epidemiologically relevant data globally stored within nationwide registries. Furthering its power, linking the CPR to the Danish National Biobank allows for connecting granular registry data to biological samples stored agnostic of its research purposes. Linking these two resources in tandem can contribute to major scientific advances (examples relevant from the organising department can be found here: https://www.predictibd.dk/publications). In this course, you will be introduced to both nationwide registries and the Danish National biobank and learn how these resources can be combined. You will get an in-depth understanding of the resources through lectures about their content, their advantages and limitations, and through examples of their use for scientific research.

The course will be held in English. 

Specific topics include:

-        Contents of the national registers and the Danish National biobank

-        How to access data and samples

-        Gaining permissions and adhering to GDPR rules

-        Examples of ongoing and recently published studies

Also, you will in groups, prepare and present a mock case study based on data from the registries and the Danish National Biobank.

Organizer: Post.doc. Maiara Brusco De Freitas, post.doc. Anthony Ebert. Post.doc. Adam Koziol, Professor Tine Jess, and Associate Professor Kristine Allin, Center for Molecular Prediction of Inflammatory Bowel Disease – PREDICT. Post.doc. Adam Koziol, Professor Tine Jess, and Associate Professor Kristine Allin, Center for Molecular Prediction of Inflammatory Bowel Disease – PREDICT.

Lecturers: The course will include lectures from researchers at PREDICT and external speakers from Statens Serum Institut.

ECTS: 2,5

Dates: 29-31 May 2024

Time: 9:00 – 16:00

Place: Aalborg University, Copenhagen, Room 2.1.005 (Globegangen), A.C. Meyers Vænge 15, Bygning A, 2450 Kbh S

Zip code:  2400

City:  Copenhagen

Number of seats: 25

Deadline: 12 May 2024

Important information concerning PhD courses: We have over some time experienced problems with no-show for both project and general courses. It has now reached a point where we are forced to take action. Therefore, the Doctoral School has decided to introduce a no-show fee of DKK 3.000 for each course where the student does not show up. Cancellations are accepted no later than 2 weeks before start of the course. Registered illness is of course an acceptable reason for not showing up on those days. Furthermore, all courses open for registration approximately four months before start. This can hopefully also provide new students a chance to register for courses during the year. We look forward to your registrations.